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Embracing a minimalist lifestyle due to struggles with Angelman syndrome?

Leaving a life of complexity behind due to Angelman syndrome, columnist Sabrina L. Johnson chooses to part ways with readers.

Exploring the impact of Angelman syndrome on my minimalist lifestyle.
Exploring the impact of Angelman syndrome on my minimalist lifestyle.

Embracing a minimalist lifestyle due to struggles with Angelman syndrome?

In the heart of southern Bavaria, a family of three has been making waves in their community, advocating for a simpler life and spreading positivity. Marisa Wexler, a mother to 14-year-old Juliana who lives with Angelman syndrome, has been writing about their experiences for over a decade.

Marisa, a dedicated teacher, often ponders whether she would be a minimalist if not for the unique challenges that come with caring for Juliana. Minimalism, as she understands it, is not about living with very little stuff, but about removing unnecessary items or beliefs to make room for what is needed most.

The journey towards minimalism began out of frustration. Marisa found a lack of positive stories about living with Angelman syndrome, and so she decided to start writing her own. Her column, titled "A Glass Half Full," has been a platform for her to share her experiences and craft stories that prove that life with Angelman syndrome can be viewed as a glass half full.

Managing self-care is one of the challenges Marisa faces. Juggling teaching, grading stacks of English papers, and her husband coaching at Juliana's school added unnecessary strain to their schedule and routine. However, the practice of minimalism has helped Marisa streamline her life, making room for what truly matters.

One aspect of her minimalist lifestyle is the purging of Juliana's old records and equipment. This simplification not only declutters their home but also serves as a reminder of the importance of focusing on the present.

Big changes in their family pulled Marisa and her husband away from a life with less. Last year, Marisa returned to full-time teaching, a decision that, while challenging, has allowed her to continue advocating for a simpler life.

Marisa's website is a treasure trove of her insights and experiences. It serves as a place to keep up with Juliana and their journey, offering a glimpse into the life of a family that has learned to live simply and positively despite the challenges that come with living with a neurogenic disorder.

As Marisa continues to write and advocate, her message remains clear: living with Angelman syndrome is not a barrier to a fulfilling life, but an opportunity to embrace minimalism and find simplicity in the midst of complexity.

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