Maintaining routines can be beneficial, yet maintaining them consistently proves to be a difficulty

In a heartwarming yet challenging encounter, a 13-year-old girl named Juliana, who lives with Angelman syndrome, taught a valuable lesson to her caregiver. Juliana, who relies on routines for consistency, was picked up by the author, an individual who usually doesn't take on this task.

The author's decision to deviate from Juliana's usual routine was a mistake. Juliana showed delight upon seeing the author, but the joy quickly turned to tears when she realised they were going to school. It seemed that Juliana, despite the author's assumption, may have thought they were going to do something fun, not attend school.

Juliana, who has a sensitivity to cold, was particularly upset on a snowy day. However, on this occasion, the author decided to be creative and flexible, coming up with an alternative plan for Juliana instead of taking her to school. This approach resulted in no crying or confusion.

Research by Margarida Maia, PhD, suggests that positive facial expressions may hold the attention of individuals with Angelman syndrome longer. The author learned to avoid forcing activities on Juliana that would disrupt her comfort level.

Individuals with Angelman syndrome may experience hyperactivity when their routines or surroundings change. Being mindful of this and adapting accordingly is crucial. The author learned a lesson about being careful with Juliana's routine to avoid causing grief.

It's essential to remember that every individual with Angelman syndrome is unique, and what works for one may not work for another. Always seek the advice of a physician or other qualified health provider with any questions regarding a medical condition.

This article is a news and information website about Angelman syndrome and does not provide medical advice, diagnosis, or treatment. The author's experience serves as a reminder of the importance of understanding and adapting to the needs of those living with Angelman syndrome.

In conclusion, being flexible and creative when dealing with Angelman syndrome is key. By learning from Juliana's experience, we can better understand and support those living with this condition.