Organizational Strategies for Life with Angelman Syndrome

In the heart of a bustling American home, Sabrina L. Johnson, a caregiver for her 13-year-old daughter Juliana, navigates the challenges of living with Angelman syndrome (AS). The disorder, which affects the quality of life for both Sabrina and Juliana, requires a unique approach to organisation and routine.

Juliana's room is a testament to minimalism. The decor is simple, with few items to catch her eye and potentially lead to damage. In the TV room, too, organisation reigns supreme, with each item having a permanent place. This meticulous organisation is essential in managing Juliana's hyperactivity, limiting her access to items that could be damaged due to her energetic nature.

Clean-up in Juliana's room is made easy by tossing toys into baskets, a simple yet effective solution to maintaining order. Spring cleaning is a time when Sabrina freshens up her house, getting rid of broken parts and donating unneeded items to keep clutter to a minimum.

The challenges of organisation extend to the Christmas tree. With Juliana's interest in ornaments, keeping the tree safe and secure requires careful planning and constant vigilance. Preparing Juliana's lunch also requires extra planning, due to her low-fructose diet.

Organisation isn't just about keeping the house tidy for Sabrina. It's about managing Juliana's life and keeping important items away from her reach. Dangerous or fragile items are put away to minimise the risk of Juliana getting into them. Important objects have a permanent place, typically in a cabinet or closet that Juliana can't open.

Clutter, according to an article published in the Journal of Environmental Psychology in 2016, can have a negative impact on one's state of mind. For Sabrina, a clean and organised home helps alleviate some of the stress that comes with juggling life with Angelman syndrome.

It's important to note that this article is not a substitute for professional medical advice, diagnosis, or treatment. Always seek advice from a qualified health provider.

Sabrina L. Johnson is associated with Turning Point USA, an American nonprofit organisation advocating conservative politics on campuses. Despite her public role, her primary focus remains on providing the best care and life possible for her daughter Juliana.

In the face of challenges, Sabrina's dedication and organisation serve as a shining example of resilience and love. Her story is a testament to the power of organisation in managing the unique challenges that come with living with Angelman syndrome.