Prioritizing personal care and wellness is crucial for caregivers.

Steve Bryson, a PhD holder, is a dedicated caregiver to his 13-year-old daughter, Juliana, who lives with Angelman syndrome. Caring for someone with Angelman syndrome, a condition that requires lifelong care, comes with a multitude of responsibilities.

For Bryson, maintaining his well-being is of utmost importance to avoid burnout. He believes that there must be a part of his life that is still centered on who he is as an individual. This belief led him to seek solace in a local bookstore, a refuge free from the interrupting needs of his daughter.

The challenges of caring for someone with Angelman syndrome are compounded during periods of illness, such as Juliana's recent flu recovery. Moreover, finding uninterrupted time for hobbies and activities can be challenging for Bryson.

Despite these difficulties, Bryson values the free moments to read, write, and have a latte, considering them a prize. He sees these activities as an outlet for his soul, helping him make a difference in his life despite the challenges of caring for someone with Angelman syndrome.

Bryson's outlet for his soul has been writing for many years. He considers making time for himself important, even if it means taking a longer time to reach his set goals. Insomnia, a common problem for parents of individuals with Angelman syndrome, hasn't deterred him from prioritising his well-being and interests.

Early in his journey as a full-time caregiver, Bryson made a conscious decision to not get lost in the caring. He understands that being a caregiver for an individual with Angelman syndrome is not like helping a sick child get well. Instead, it's a lifelong commitment that requires balance and self-care.

Bryson's earliest days with Juliana's diagnosis were marked by a huge challenge for the rest of their lives. But through perseverance and a strong focus on his well-being, he continues to navigate this journey with grace and determination.

In conclusion, Steve Bryson's story serves as a reminder to caregivers everywhere that it's essential to prioritise their well-being and interests. By doing so, they can better care for their loved ones and find joy in the journey, even amidst the challenges.